So one of the best phrases you can hear is "The scan showed that mass on your liver is just a little cyst, nothing to worry about at all". And I heard that this week! Ah, the sweet bliss of scratching a dreaded disease off the list. We'll just get a sonogram of my liver next year to be sure it's still not a problem. Easy as pie!
Another great thing that has happened this week is that I now have a doctor that is coordinating all my care. I mean all of it. He is working with my primary care doc, finishing up his residency. My primary care doc asked him if he would take this on because I was getting so overwhelmed with all the tests, possible diagnoses, research, etc. So the first day he got my files, he spent 7 hours (7!!) reading through all my medical notes, labs, tests and scans. He even organized all my tests into an excel spreadsheet (a man after my own heart).
Later that day, we met and just talked for an hour and a half. He reviewed a lot of tests with me, asked me tons of questions and ordered a few blood tests. I told him how frustrated I was with the sarcoidosis hunt- feeling like we've done an extraordinary amount of testing and haven't found a thing. And now they want to do a broncoscopy. It is a somewhat invasive test where I have to be under anesthsia and I'm just not crazy about the idea. The test was set for Friday morning, but I was having reservations.
My new Wonder Doc told me he agreed that the value of the test was questionable in my situation, and I decided I wanted to postpone the test. That way I could talk to my cardiologist before I did it, just to make sure it was necessary. Well, if that didn't cause a stink. When I called to cancel, the bronch lab lady was aghast that I would question the doctor's wisdom. I told her I wasn't ruling it out, I just wanted some more time. After I got off the phone, a resident that was going to be part of the procedure called me to ask if I was really sure. I said yes. She asked again. I said yes. She asked again (No joke. 3 times. Seriously). I told her I was completely sure. So she grudgingly agreed to cancel the test. I then grudgingly agreed to make an appointment with the sarcoidosis doc in a few weeks to discuss again. Good grief.
But other than all these tests and stuff, I've been feeling pretty good! I rode my bike 6 miles on Friday (whoa!) and it was totally awesome. I was exhausted for the rest of the day, but it was worth it. : )
In a few days, we are headed to Oklahoma for my brother Skylar's wedding. His fiance Sabrina is a hoot and is already a part of the family. The only snag is that it
is supposed to be 109 degrees there. *cough* 109. I've gotten soft, living in Seattle where "hot" is 80. I'm a touch worried about it, just because I tend to get dizzy and wimpy in the heat...A/C will be my best pal! But seeing the family and friends will be awesome. And Nick gets to go with me for the weekend- holla!
So that's all for now...I'm excited to see some of you at the wedding!