Hi All,
It's so rude of me to write a blog while I'm still in the hospital and then not follow it up. How rude.
So I was released the next day, and have mostly been fine since. They are now thinking that the attacks were caused by spasming veins. Ever since I've been sick, the docs have commented that my veins seize up when they try to thread any wires through them. It's like a charley horse, but in a tiny vein. Well, it looks like some of my veins are doing that when I exert myself (both attacks came after I walked a little faster and further than I should have).
The good news is that nitroglycerine should help, and as I get in better shape from cardiac rehab (which I've been back at for about 2 weeks), my heart should be able to work more without spasming.
I did have a full body scan and 2 cat scans last week, trying to figure out the elusive sarcoidosis. I'm about ready to tell them that if it's this hard to find, do we really need to keep looking? I'll see the sarc specialist sometime this next month and see what he says, but if it looks like a wild goose chase, I'm out.
I am happy to report that I've been feeling really good lately. I definately still have some crummy days, but I've had some excellent ones too. And a few of those excellent days have coincided with gorgeous sunny days in Seattle. Driving down near the lake and the bay with the windows down, sunglasses on, and jamming to Justin Bieber? Yes please! (Oh you know when JB comes on the radio, you dig it. Don't lie.)
I've saved the fancy news for last...some of you already know due to the wonders of Facebook- I got accepted into the University of Washington's business school! I'm going to start working on my MBA (part time) this fall. I'm so excited! I'm pretty sure I'm going to need a unique job when I can go back to work (flexible hours, maybe contract work) and I think having an MBA will let me get the best job for my needs. Or maybe even work for myself, starting a consulting business. I'm so excited to get started with the next step in my life. One of the worst parts of this illness has been that I've felt stuck and without any control. No more!
I've spent a LOT of time thinking about the pros and cons of going back to school. What if I get sick and have to spend 2 weeks in the hospital? What if school makes me really tired? What if I take a turn for the worse and need a transplant? All valid points, but I'm willing to take the risk. I'll handle any setbacks that I come across and reasses as needed. My docs are very encouraging about school and think that having something big to work towards tends to help patients more than hurt them.
So come September, you can find me at UW cheering for the Huskies, getting my business on!
Lots of love,
Jana
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